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Challenging health inequalities and empowering communities to take control of their health.

Ophelia Haanyama

Ophelia Haanyama is a longtime activist, speaker and author born in Zambia, but based in Sweden since 1991. For over three decades she has led and been part of projects and networks such as Women for Positive Action and AIDS Action Europe.

Ophelia has been a pioneer when it comes to implementing community testing in Sweden and holds a passion for reaching out to migrant communities. As a woman living with HIV since the early nineties and a mother of two, she has also worked on parenting, menopause and ending HIV stigma.

She has written two books, Ophelia´s journey and The journey ahead: Ending the HIV epidemic. She is also the pioneer of Women Know What Works, an Ambassador for ViiV THRIVE Project. She arranged a successful preconference at the AIS conference in Kigali Rwanda, where she also launched HIV UNWRAPPED Rwanda and attended the HIV WRAPPED fashion show during the NY Fashion week in September 2025.

She is currently working at Positthiva Gruppen as an expert in Cultural Cooperation. Ophelia was invited to speak at ViiV “Deep Skin” which held at EACS 2025.She is one of the people who was invited to attend ViiV ‘s Global Patient Summit in Lisboan

News featuring Ophelia

Positive Health – Episode 6

Positive Health – Episode 6

Co-hosts Susan Cole and Denis Onyango are joined by Ophelia Haanyama and Dr Michael Brady. They will be discussing the pressing issues around HIV affecting Black communities, and solutions to the challenges faced. This episode was streamed live on Monday 24 November...

Juddy Otti

Juddy Otti

Juddy Otti Juddy has more than 15 years of experience in the HIV sector, delivering and leading a wide range of initiatives across Hertfordshire and London. Her expertise spans HIV prevention programmes, including PrEP, as well as providing holistic support to people...

Florence Riako Anam

Florence Riako Anam

Florence Riako Anam Florence Riako Anam is the Co-Executive Director at the Global Network of People Living with HIV (GNP+). She is a global advocacy thought leader in the HIV response and movement. It matters to her that global policy and research decisions translate...

Dr Harvey Kennedy-Pitt

Dr Harvey Kennedy-Pitt

Dr Harvey Kennedy-Pitt Harvey Kennedy-Pitt is a global public health consultant, health equity strategist, and scholar-advocate focused on advancing health equity for raciosexual and gender minorities. With expertise in research, policy, and practice, he develops...

Winnie Ssanyu Sseruma

Winnie Ssanyu Sseruma

Winnie Ssanyu Sseruma Winnie Ssanyu Sseruma is a UK-based international development consultant, global health advocate, and prominent voice in HIV/AIDS activism. Living with HIV for decades, she has dedicated her career to fighting stigma, shaping health policy, and...

Gemma Poole

Gemma Poole

Gemma Poole Gemma Poole is an award winning midwife and portfolio founder building the infrastructure that enables health systems to turn insight into action at scale. Across healthcare, organisations generate data, design services, and invest in innovation, yet...

Juan Michael Porter II

Juan Michael Porter II

Juan Michael Porter II Juan Michael Porter II is a Black gay man living with HIV in the middle of Brooklyn. He serves as health journalist, culture critic, educators, and HIV advocate. He is the Director of Communications of Positive Women's Network-USA as well the...

Doreen Moraa Moracha

Doreen Moraa Moracha

Doreen Moraa Moracha Doreen Moraa Moracha is a Kenyan HIV advocate and digital content creator committed to strengthening community leadership in the global HIV response. She serves as the African Representative to the NGO Delegation to the UNAIDS Programme...

Mackayla Forde

Mackayla Forde

Mackayla Forde Mackayla Forde, aka ‘RED MEDUSA’ is a poetic-academic and researcher making unique contributions to academia, poetry, and public health. She is a LISS-DTP PhD candidate at Queen Mary University of London's Global Public Health Unit within the Wolfson...

Melissa Sigodo

Melissa Sigodo

Melissa Sigodo Melissa Sigodo is an awarded journalist and founder of Black community news site The Source. She previously worked for a National newspaper before launching her own independent platform which has broken numerous stories and is holding power to...